Why can't our PANS kids recover?
We treat the infections. We treat the inflammation. And still they cycle. Still they don't come back. As a mom, I couldn't stop asking why. I kept looking for an answer to why—and found something nobody else was asking about.
What happened to my child?
If you found this page, you already know what it feels like to lose your child overnight.
You’re trying to trust the protocol, that it’s working, and to give it time. Still, you feel it: something is missing.
You’ve seen that glimmer of hope—when they were calm, present, and joyful—and then lost it again before you could take a breath.
You are fighting every day for a baseline that you’re no longer sure you would recognize.
Your child was doing great for a year, then they had several illnesses over months or back-to-back illnesses, and now, suddenly, their PANS synptoms are flaring.